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Chronic Fatigue Syndrome – Finally I Have a Diagnosis!

Today was an interesting day as I finally got a definite answer about my tiredness. I have been feeling off for many years and now I know for certain.

I met a specialist who asked me a varied mix of questions covering symptoms and situations as well as lifestyle.

I got the news that I have CFS – chronic fatigue syndrome

My symptoms cover: poor sleep, aches, poor memory and concentration, stomach pains, racing heart and that’s all on a good day, Ha!

It’s nice to know I’m not crazy in thinking something is wrong when all the tests proved good. She explained it as all organs are working, just not together.

Boom and Bust!

In feeling the way we do she explained that we are starving the body of exercise to keep energy for later. The problem there is we can’t then get going later. I had this feeling of constantly running on 30% battery and so to save it for an emergency seemed the right thing to do.

Next comes the confusing activity of keeping moving when I get tired. There’s a challenge!

Later I will get a session with someone to help create a routine. This is not a quick fix and can take a long time to get right, it at all.

Reference for CFS sufferers:

She was nice and she has a website along with a pdf explaining what CFS and ME are. So if anyone you know has this also then tell them about her as she has many years’ experience on this.

This Post Has 6 Comments

  1. marandarussell

    I have CFS too, as well as fibromyalgia, and I know it is no fun 🙁 Glad at least you know now.

  2. Nigel

    I had so many tests and nothing seemed wrong. In fact my doc said they were all good but I still had no energy. As you say knowing the reason feels part of the solution 🙂 Hope your good too.

  3. Formerly Cots

    Goodness me, isn’t getting a definitive diagnosis of CFS/ME difficult in the UK! I felt like there was more of my blood in the NHS blood test system than was actually in me. I had very low B12 and got briefly sidetracked down the pernicious anaemia route before ending up with ME because there was nothing else.
    It’s not a lot of fun but hopefully your diagnosis gives you something to hang your hat on. Good luck, and I look forward to reading your blog!

    1. Nigel

      I think they got bored of seeing me after all those tests. Tests I might add that showed no problems. I felt they didnt really know what to do next. For me gardening is my controllable exercise to keep active and not rest. Take care 🙂

  4. Marcy

    Hi! I never blog, but I just read a book this morning that might interest you: “Change Your Schedule, Change Your Life” by Dr. Suhas Kshirsagar. It’s cheap on Kindle right now too. This might help you. I also loved your book: “English Discussion Topics.” Thank you!

    1. Nigel

      Hi Marcy, Thanks for the book suggestion, I’ll look into it. Also Im glad you liked my book. Take care

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